bald, bald, bald

Monday, February 28, 2011

so, now I'm just pissed

I have this triple negative cancer.  BFD.  I'm not fighting it, I'm being treated for it with whatever they have on hand.  Which, for this particular cancer is just plain ol' chemo.  dose dense, 'cause that seems to have good results.  great.

Stay off the internet, don't read other people's stories, they are scary and not very many of them have happy endings.  They don't have happy endings because they're not over yet.  This TNBC is relatively new, so there aren't 30 years of studies to tell me what to expect.  So, all the posts are by people who are living what I'm living.  I don't have the brilliant words to put down to express my anger at the pink revolution, and what a sham it appears to be.  I was suckered into it, all the way up to finding out that some organizations would spend donated dollars on lawyers to defend a common phrase, when I thought all those donated dollars were going to research this disease, and perhaps find a cure.  Can't find the cause because there are too many different kinds out there, but there damn sure has been enough money raised to put towards a concerted effort at a cure.  It's an effing gene mutation for God's sake!!!


But if we isolate that gene, and figure out a way to unmutate it, then the pharmaceuticals would be out zillions of dollars.

over $5K for one Nulasta shot to keep my WBC's up.  I'm not in that clinic for one whole minute to receive that shot, and the bill is over $5K.  Can't wait for the bills for when I spend hours at at time in there hooked up to the poison bottles.

I think Absinthe would be more fun.

WTF

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